Note: I was watching The Resident-and this condition came up. So I decided to make a post about it. Sickle cell disease is a term that often doesn’t get the attention it deserves, even though it affects millions of people worldwide. Despite being one of the more common genetic disorders, it remains shrouded in misconceptions…
Tag: Patient Advocacy
Breaking the Stigma Around Invisible Illness: What You Don’t See Matters
Living with an invisible illness is like navigating life with a secret that no one understands. The world often judges what it can’t see, and that judgment can feel heavier than the illness itself. If you’ve ever faced disbelief, skepticism, or dismissal because your condition isn’t visible, you’re not alone. What Is an Invisible Illness?…
What Patients Should Know About Spondyloarthritis and Its Impact on Daily Health
Spondyloarthritis (SpA) is one of the conditions I have been living with for so long, though doctors do believe my condition is mixed with something else. Living with spondyloarthritis (SpA) has been an ongoing journey for me—one filled with highs, lows, and a lot of learning along the way. I understand the daily struggle of…
Hidden Links: Spine Conditions and Unusual Symptoms You Might Not Expect
Hidden Links: Spine Conditions and Unusual Symptoms You Might Not Expect Living with a chronic spine condition has been a constant learning experience. You’d think it would only affect my back, right? Not exactly. Over time, I’ve discovered that spine issues can have a domino effect on parts of the body I’d never have associated…
Deidre Matthews 